Bienestar y calidad de vida en estudiantes con implante coclear

  1. Olga María Alegre de la Rosa 1
  2. Luis Miguel Villar Angulo 2
  1. 1 Universidad de La Laguna, España
  2. 2 Universidad de Sevilla, España
Revista:
Psychology, Society & Education

ISSN: 1989-709X 2171-2085

Ano de publicación: 2019

Volume: 11

Número: 3

Páxinas: 329-340

Tipo: Artigo

DOI: 10.25115/PSYE.V11I3.2081 DIALNET GOOGLE SCHOLAR lock_openDialnet editor

Outras publicacións en: Psychology, Society & Education

Resumo

In order to know the well-being and quality of life (WQoL) of students with cochlear implants (CI) and hearing aids (HA), the KINDLR questionnaire was administered to a sample of 187 CI students and to another sample of 113 students with HA. A modified KINDLR questionnaire was also applied to 156 parents to compare their opinions with those of their children. A one-way multivariate analysisofvariancewas applied to determine if there were differences between the independent groups (students and their parents) in more than one continuous dependent variable (KINDLR dimensions). In addition, a Kappa index and an intraclass correlation coefficient examined whether there was agreement between the students and their parents by means of assessing variability for WQoL improvement. Students with CI perceived WQoL differently compared to students using HA. There was an agreement between the opinions of both groups of students and the opinions of their parents on the total WQoL. The results of this study can be used to create personal, family and school counseling strategies to improve WQoL of students with hearing difficulties.

Referencias bibliográficas

  • Christophersen, K.-A., Helseth, S., y Lund, T. (2008). A generalizability study of the Norwegian version of KINDLR in a sample of healthy adolescents. Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation, 17(1), 87-93. http://doi:10.1007/s11136-007-9289-y.
  • Cohen, J. (1960). A coefficient of agreement for nominarl scales. Educational and psychological measurement, 20, 37-46.
  • Edwards, L., Hill, T., y Mahon, M. (2012). Quality of life in children and adolescents with cochlear implants and additional needs. International Journal of Pediatric Otorhinolaryngology, 76(6), 851-857. http://doi:10.1016/j.ijporl.2012.02.057.
  • Hintermair, M. (2011). Health-related quality of life and classroom participation of deaf and hard-of-hearing students in general schools. The Journal of Deaf Studies and Deaf Education, 16(2), 254-71. https://doi.org/10.1093/deafed/enq045.
  • Huber, M. (2005). Health-related quality of life of Austrian children and adolescents with cochlear implants. International Journal of Pediatric Otorhinolaryngology, 69(8), 1089-1101. https://doi: 10.1016/j.ijporl.2005.02.018.
  • Landis, J., y Koch, G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33, 159-174.
  • Lee, P.H., Chang, L.I., y Ravens-Sieberer, U. (2008). Psychometric evaluation of the Taiwanese version of the Kiddo-kINDL generic children's health-related quality of life instrument. Quality of Life Research, 17(4), 603-611. http://doi:10.1007/s11136-008-9328-3.
  • Loy, B., Warner-Czyz, A.D., Tong, L., Tobey, E.A., y Roland, P.S. (2010). The children speak: An examination of the quality of life of pediatric cochlear implant users. Otolaryngology - Head and Neck Surgery, 142(2), 247-253. https://doi.org/10.1016/j.otohns.2009.10.045.
  • Meserole, R.L., Carson, Ch.M., Riley, A.W., Wang, N.-Y., Quittner, A.L., Eisenberg, L.S., Tobey, E.A., Francis, H.W., y Niparko, J.K. (2014). Assessment of health-related quality of life 6 years after childhood cochlear implantation. Quality of Life Research, 23(2), 719-731. http://doi: 10.1007/s11136-013-0509-3.
  • Neumann, S., Salm, S., Rietz, Ch., y Stenneken, P. (2017). The German Focus on the Outcomes of Communication Under Six (FOCUS-G): Reliability and Validity of a Novel Assessment of Communicative Participation. Journal of Speech, Language, and Hearing Research, 60, 675-681. http://doi:10.1044/2016_JSLHR-L-15-0219.
  • Rajmil, L., Serra-Sutton, V., Fernández-López, J., Berra, S., Aymerich, M., Cieza, A., Ferrer, M., Bullinger, M., y Ravens Sieberer, U. (2004). Versión española del cuestionario de calidad de vida relacionada con la salud en población infantil y de adolescentes: el KINDL. Anales de Pediatría, 60(6), 514-521. https://doi.org/10.1016/S1695-4033(04)78320-4.
  • Ravens-Sieberer, U., y Bullinger, M. (1998). Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results. Quality of Life Research, 7(5), 399-407. https://doi.org/10.1023/A:1008853819715.
  • Ravens-Sieberer, U., y Bullinger, M. (2000). KINDL: Questionnaire for Measuring Health-Related Quality of Life in Children and Adolescents—Revised Version: Manual. Recuperado de: http://www.kindl.org/app/download/6676124784/KINDL_manual_English.pdf?t=1394710098
  • Razafimahefa-Raoelina, T., Farinetti, A., Nicollas, R., Triglia, J.-M., Roman, S., y Anderson, L. (2016). Auto- et hétéroévaluation de la qualité de vie des enfants implantés cochléaires. Annales françaises d'Oto-rhino-laryngologie et de Pathologie Cervico-faciale, 133(1), 29-33. https://doi.org/10.1016/j.aforl.2015.01.012.
  • Rotsika, V., Coccossis, M., Vlassopoulos, M., Papaeleftheriou, E., Sakellariou, K. Anagnostopoulos, D.C., Kokkevi, A., y Skevington, S. (2011). Does the subjective quality of life of children with specific learning disabilities (SpLD) agree with their parents' proxy reports? Quality of Life Research, 20(8), 1271-1278. https://doi.org/10.1007/s11136-011-9857-z.
  • Sakiz, H., Sart, Z. H., Börkan, B., Korkmaz, B., y Babür, N. (2015). Quality of Life of Children with Learning Disabilities: A Comparison of Self-Reports and Proxy Reports. Learning Disabilities Research & Practice, 30(3), 114-126. https://doi.org/10.1111/ldrp.12060.
  • Shrout, P.E., y Fleiss, J.L. (1979). Intraclass Correlations: Uses in Assessing Rater Reliability. Psychological Bulletin, 86(2), 420-428. http://dx.doi.org/10.1037/0033-2909.86.2.420.
  • Stevanovic, D. (2009). Serbian KINDL questionnaire for quality of life assessments in healthy children and adolescents: reproducibility and construct validity. Health and Quality of Life Outcomes, 7, 79. https://doi.org/10.1186/1477-7525-7-79.
  • Stevanovic, D., Tadic, I., Novakovic, T., Kisic-Tepavcevic, D., y Ravens-Sieberer U. (2013). Evaluating the Serbian version of the KIDSCREEN quality-of-life questionnaires: reliability, validity, and agreement between children's and parents' ratings. Quality of Life Research, 22(7), 1729-37. doi: 10.1007/s11136-012-0286-4.
  • Upton, P., Lawford, J., y Eiser, Ch. (2008). Parent–child agreement across child health-related quality of life instruments: a review of the literature. Quality of Life Research, 17(6), 895-913.
  • Warner-Czyz, A.D., Loy, B., Roland, P.S., Tong, L., y Tobey, E.A. (2009). Parent versus child assessment of quality of life in children using cochlear implants. International Journal of Pediatric Otorhinolaryngology,73(10), 1423-1429.
  • Wee, H.L., Lee, W.W.R., Ravens-Sieberer, U., Erhart, M., y Li, S.C. (2005). Validation of the English version of the KINDLÒ generic children’s health-related quality of life instrument for an Asian population – results from a pilot test. Quality of Life Research, 14, 1193–1200. http://doi:10.1007/s11136-004-2957-2.
  • Yamaguchi, N., Poudel, K.C., Poudel-Tandukar, K., Shakya, D., Ravens-Sieberer, U., y Jimba, M. (2010). Reliability and validity of a Nepalese version of the Kiddo-KINDL in adolescents. Biosci Trends, 4, 178-185.